PRIMARY CAREGIVER FOR DISABLED CHILD, Bethesda MD
Medical Manager, Education Coordinator, Summer 1998-present
Supervise all aspects of care for child with basal ganglia disease of unknown etiology. Work with multiple pediatric specialists to develop care and treatment plans; manage health insurance and prescription drug benefits, including knowledge of extent of benefits, acquisition of appropriate authorizations, and develop understanding of and solutions to billing problems and explanation of benefits forms; work with physical therapists to identify and acquire appropriate durable medical equipment. Work with school staff to develop appropriate Individualized Education Plan (IEP) in accordance with local, state, and federal laws and regulations; field questions from school staff; meet with school staff when necessary. Supervise and provide training to childcare providers and respite workers.
Too bad people would laugh at me if I actually had it on my resume. Oh, and I forgot to add taking him to therapy appointments and working with physical therapists. Maybe I should list the names of the medical specialists? But I've spent ten years of my life doing this--don't I deserve some kind of career credit for it? It's been both a labor of love and a job.
I filed it under "significant non-paid experience" along with the Alice James stuff, which was volunteer work.
And does all of this add up to an honorable column of work? There are gaps, sudden career shifts--things all over the map! Arts, education, public-policy related work, entry level jobs. It's a resume that makes no sense. Anyone who looked at it would wonder what my objectives were, why I'd moved from this to that, why the gaps were there.
I'm going to try talking to female friends who work and have careers with or without children, but without the obstacles I've faced and try to figure out what can be salvaged of my professional life. Let's hope they don't just gasp!